Just Deinum was born with a Tetralogy of Fallot in combination with a VSD. He is a board member advocacy of the Patient Association Congenital Heart Disorders (PAH) in the Netherlands. PAH supports children and adults with a congenital heart defect along with their parents, partners, family members and other caregivers.
Their goal is to create even more impact together to increase the chances of survival and improve the quality of life and that members can participate in society as well as possible. They organize and facilitate contact with fellow patients, provide information and promote the interests of adults with congenital heart defects.