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Transforming Collaborative Research Report

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Can you help with a research study into Remote Monitoring in ACHD?

Do you already use a watch to monitor your heart? Be part of this research by completing a questionnaire to demonstrate how you feel about using it. If you don't already use one, the researcher is looking for people to test a new watch that…
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Focus Group – Quality of Life of adult Fontans

Join the focus group! More and more Fontan patients are now reaching adulthood, which is an amazing medical feat. Despite the advances in medicine, patients are still facing more struggles in everyday life compared to their healthy peers, and…
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Are you interested in a Focus Group?

Ambulatory Care Delivery in Adult Congenital Heart Disease (CARE-ACHD) - Developing methodology for a pragmatic RCT of Adaptive Patient-Centred Care versus Usual Care We would like to invite you to take part in an online focus group. We are…
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MuM-PreDiCT Survey 2

We have been asked to share the below information on behalf of the MuM-PreDiCT research group (8 universities, MRC-NIHR funded). Their goal is to improve care for pregnant women with multiple long-term health conditions through research. More…
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NHS Golden Jubilee SACCS Improvement Project

Help the Scottish Congenital Cardiac Service (SACCS) improve their service We have been requested to share the below on the NHS Golden Jubilee SACCS Improvement Project. The NHS Golden Jubilee is launching an improvement project to ensure…
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Focus Group -Pregnant women and birthing people with 2 or more long-term health conditions

Our goal is to improve care for pregnant women and birthing people with multiple long-term health conditions through research. - On behalf of MuM-PreDiCT | http://mumpredict.org/  We are inviting women and birthing people to participate…
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Heart Disease Lived Experience Network

If you live in Scotland and been affected by heart disease we want to hear about your experiences and work with you to make improvements. In Scotland today, around 400,000 people live with Heart Disease. To ensure we can improve access…
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SURVEY: Help The Somerville Foundation improve!

This is an important opportunity for our community (you!) to tell us what you think. The results of this survey will assist with the charity's future plans, it is also an opportunity for you to be more involved, with additional volunteer…
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Survey: Congenital Heart Disease Priority Setting Partnership

Have YOUR say on the future of Congenital Heart Disease research! A national study has been launched to identify and prioritise the areas of future research in congenital heart disease that are most important to patients, their families,…
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Survey Responses – Cardiology 2022 Curriculum Survey

We have provided responses below explaining further detail regarding the completion of the Cardiology 2022 Curriculum Survey by the 20th of June 2021. We hope this will give information as to what the differences will be to ACHD services should…
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TAKE THE SURVEY: Cardiology 2022 Curriculum Survey

Your vote is URGENTLY needed! ACHD CARDIOLOGY IS AT RISK! Your say can shape the future of ACHD services, or they will VANISH! We need as many people, not just ACHD patients to take part in this survey! The deadline to participate is the 20th…
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congenital-cardiac-disease-review-patient-experience-scotland

Congenital Cardiac Disease Review – Patient Experience – Scotland Our research panel is calling on members to complete a questionnaire to support the review of specialist congenital cardiac services in Scotland. Please complete the questionnaire…
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(Champion) Congenital Heart Audit: Measuring Progress In Outcomes Nationally – Study information

[pdf-embedder url="https://thesf.org.uk/wp-content/uploads/2020/08/CHAMPION-PDF.pdf" title="CHAMPION PDF"]     Additionally, the Facebook group link is here: https://www.facebook.com/groups/3527935317237482  
Image by Jose R. Cabello from Pixabay
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COVID 19 ACHD Webinar Q & A Panel Responses

On the 8th of April 2020 Professor Michael Gatzoulis facilitated a webinar on Covid-19 and ACHD with colleagues from the Lombardy region of Italy. Below are the answers to the questions that were posed to the panel. Question: What is my risk…