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Survey: Congenital Heart Disease Priority Setting Partnership

Have YOUR say on the future of Congenital Heart Disease research! A national study has been launched to identify and prioritise the areas of future research in congenital heart disease that are most important to patients, their families,…
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Survey Responses – Cardiology 2022 Curriculum Survey

We have provided responses below explaining further detail regarding the completion of the Cardiology 2022 Curriculum Survey by the 20th of June 2021. We hope this will give information as to what the differences will be to ACHD services should…
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TAKE THE SURVEY: Cardiology 2022 Curriculum Survey

Your vote is URGENTLY needed! ACHD CARDIOLOGY IS AT RISK! Your say can shape the future of ACHD services, or they will VANISH! We need as many people, not just ACHD patients to take part in this survey! The deadline to participate is the 20th…
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My Open Heart

I started to walk faster, legs shaking, and sheer panic overtook my entire body. As fast as my shaking legs could take me, I stumbled down the escalator of Oxford Circus station, attempting to get home. I carried the ‘panic attack’ label…

Let your voice be heard!

We Need Your VOICES! We need your VIDEOS! We need Your PICTURES! We need your WORDS! Be part of our new Hearts, Minds and COVID19 Campaign. Tell us in a voice clip or video how being part of The Somerville Foundation Community has helped…
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Robert’s 26 Flights for 26 days

  Robert Kemp, Chicane Connect MD has decided to embark on 26 flights for 26 days in order to raise funds for The Somerville Foundation.  Chicane Connect has proudly supported The Somerville Foundation for many years. Robert…
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Help to save your Charity – Join the 2.6 Challenge!

Help us to Save the UK’s Charities! The Covid-19 pandemic is having a catastrophic effect on UK charities leading to an estimated loss of £4 billion for the sector. Charities, like the Somerville Foundation depend on income from fundraising…
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Join the 2.6 Challenge – It’s gonna be Epic!

Help us to Save the UK’s Charities! The Covid-19 pandemic is having a catastrophic effect on UK charities leading to an estimated loss of £4 billion for the sector. Charities, like the Somerville Foundation depend on income from fundraising…
Patient: Adam Stevens
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Adam’s Story

Name: Adam Stevens Age: 39 Age when diagnosed: 2 weeks (originally suspected ToF) Condition: Transposition of the great arteries. How has having a heart condition impacted on your mental health? It’s given a schema of life that…
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David’s Story

Name: David Makinson Age: 54, born May 1964 Age Diagnosed: Soon after birth at The Middlesex Hospital, London – the child of a single mother who wished to put me up for adoption. How has CHD affected your mental health? In a nutshell,…
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Liza’s Story

Name: Liza Morton Age: 41 Age Diagnosed: At birth Condition: Congenital heart block and a surgically fixed atrial septal defect (ASD) Growing up, I tried to focus on the positives but we are our stories and mine emerged from difficulty.…
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Emily’s Story

Name: Emily Sterling Age: 24 Age when diagnosed: 6 weeks old Condition: Bicuspid aortic valve, mixed aortic valve disease (aortic stenosis and regurgitation) In February 2015 (just after my 20th birthday) I had open heart surgery…
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Roderick’s Story

Name: Roderick Skinner Age: 77 Age when diagnosed: 44 Condition: Triple bypass and replacement of defective (congenital)  aortic valve with a mechanical heart valve. How has having a heart condition impacted on your mental health? The…
Somerville Foundation Appeal
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Susan’s Story

Name: Susan Manley nee Millard Age: 66 Age when diagnosed: Before 1 year old Condition: Three holes in the heart and faulty Tricuspid valve How has having a heart condition impacted on your mental health? We were the experimental…
Somerville Foundation
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Izzy’s Story

Read an extract from Izzy's original post... I started to walk faster, legs shaking, and sheer panic overtook my entire body. As fast as my shaking legs could take me, I stumbled down the escalator of Oxford Circus station, attempting to get…
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Olympic Medallist and World Champion Roger Black Speaks from the Heart

There has been much excitement at The Somerville Foundation office recently since world champion and Olympic silver medallist Roger Black agreed to be the host of our Radio 4 Appeal. Izzy Oag, the subject of our appeal case study, Lowri Smith…
Dr Morton ACHD
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Scarred for life

Scarred FOR Life is a special photo exhibition sharing the problems and heartache that accompany living with a heart condition, both mental and physical. The first Scarred FOR Life exhibition was held in 2015 at the Kelvingrove Art Gallery…
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Scarred for Life – Scotland

A Celebration of Life Scarred FOR Life is an exciting new project - a special photo exhibition of adults born with Congenital Heart Disease (CHD) baring their scars in celebration of life. The project was run in Scotland by three CHD volunteers…