“The days when I’d leave the house would send me into a spiral of worry, worry that people could see into my chest. The mirror was a place of sadness as I spent my days staring at the site of where there would soon be a scar. My body didn’t feel like mine, I had been invaded – I had been shattered. I was lucky enough to speak to someone who reassured me that she felt how I do…Talking is definitely a healer and the mind is a very powerful thing.”
“I went from loving being independent at university to moving back home and totally reliant on my family…The Somerville Foundation has helped me remember I was not alone at a very low point during my life. I was so incredibly lucky to have a wonderful, supportive family around me but there are some things they couldn’t understand. Knowing that other people who I’d never met before knew my struggle and got through it was such a comfort to me.”
“I was diagnosed with a heart defect at birth. I felt alone, scared, broke and my mental health was fragile to say the least – until I discovered The Somerville Foundation. Through them I met people who shared my condition and from there, I had a network of people who understood me. Quite possibly that network and support have saved my life. Now, 10 years on, I am happy, healthy and a contribution to society through my work helping people in the general population with their health.”
“As loving and as supportive as my wife is, she doesn’t understand what it feels like to live with CHD or the toll it takes – but why would she? She recognises when I am anxious but is not trained or equipped to offer anything other than kind words and to shoulder the day-to-day burdens when I’m feeling particularly anxious….The Somerville Foundation allows me to vent my feelings and frustrations and share my experiences and coping strategies with others who require support.”
The Radio 4 Appeal is a weekly three-minute programme highlighting the work of a charity and appealing for donations to support its activities.
It gave us a fantastic opportunity to highlight the work of The Somerville Foundation to the BBC’s audience, and to raise money to help support adult CHD patients.
Our Appeal has ended but you can still donate to The Somerville Foundation
“The contemplation of heart surgery had the effect of me focusing on my own mortality. I was convinced that the operation would be unsuccessful and lead to my early demise. That had a profoundly depressing effect on me and impacted on my family and my relations with them….The Foundation is a constant source of advice and information. Being a part of it gives ready access to those with similar conditions and allows for a practical exchange of experience.”
“I think I should have been taught ways to express my distress. But, the truth is no one really knew that at the time. Everyone who cared was just muddling along doing their best for me, and keeping themselves together. You just get on with it when you don’t have a choice.”
“I get very anxious about my care and The Somerville Foundation helped when my specialist at Plymouth retired. We now have a lovely person who is back seeing me regularly which helps. However, the biggest help is contact with others who understand how life is for us. Until I found them about 20 years ago, I was a very lonely island.”
A gift of £25 would fund a place for one person at a peer-support meet-up, helping heart patients manage their heart condition and conquer depression and anxiety.
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