About Somerville Heart Foundation
Somerville Heart Foundation is the only UK-wide charity supporting adults and young people as they transfer to adult services, with all forms of Adult Congenital Heart Disease (ACHD).
The charity was set up in 1993 by Professor Jane Somerville who recognised the need for a charity for this new and rapidly growing set of survivors.
It is estimated there are over 250,000 people in the UK who have survived into adulthood, with now more adults having the condition than children as around 90% now survive as opposed to 15% during the 1950s and 1960s.
We are here to provide many of their non-medical and psychological needs so they can lead as fulfilled lives as possible, as well as campaigning to make sure the health services are there for their physical needs.
We aim to:
- Provide accurate information and advice to allow those with ACHD to take informed decisions, become expert patients, grasp opportunities, and consider lifestyle choices
- Combat the isolation felt by so many along with helping allay their anxieties and fears as well as those of their families
- Help those with ACHD to share experiences and thoughts of others in the same position as them and to enable the provision of mutual support.
- Fight discrimination and ignorance through campaigning, educating, and promoting the rights and needs of those with ACHD